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Navigating the Holidays with Children Affected with Incurable Diseases

The holiday season is traditionally a time of joy, celebration, and family togetherness. But when your child is terminally ill, it can feel like an emotional balancing act. Navigating this time of year may bring up complex feelings of sorrow, love, hope, and fear. Yet, the holidays can still be meaningful and filled with moments of connection and comfort. 1. Give Yourself Permission to Feel All Emotions The holidays may bring up a wide range of emotions—joy, sadness, gratitude, fear, and everything in between. It’s important to allow yourself and your family members the space to feel whatever arises. You don’t…

The Forgotten Siblings

An estimated twenty-seven percent of children are living with one or more chronic illnesses. Chronic illnesses are diseases that last more than several months or those with the impossibility of a cure. Most people are well aware of the impact that physical symptoms and treatment can have on the life of the sick child. However, the lives of all members of that sick-child’s family are changed by the illness, including caregivers and the well-siblings. Siblings’ lives may be impacted in many ways: parents may need to spend a disproportionate amount of time with the sick-child, going to medical appointments and…