Rare neurological disorders claim lives much too early.

We Want to Build Bridges
to a Brighter Future.

No caregiver journey is the same, yet each caregiver needs one powerful thing:


We are here for you.

exhaust personal savings
experience emotional stress
report feeling alone
Source: Rare Disease Caregiving in America 2018

“B Brave has allowed me to have a resource that I am able to refer my patients to, so they can have an extra layer of support during their most difficult time in their life.”
– Sally Fenik, CPN Cleveland Clinic

Providing Support for Families

B Brave Foundation supports families so they can care for their child without added financial stress and uncertainty. We provide tools and tactics to improve communication between families and medical providers. We work to empower doctors, nurses, therapists and child life specialists with tools to better serve our families, bridging gaps in a fragmented healthcare system that is not designed to manage children with complex medical needs. We equip parents to be resilient during times of unimaginable sorrow. And, we work to help them heal.