Maddie Shines at Fundraiser and Beyond Our annual fundraiser was made extra special by our star attendees Maddie and her mom. Maddie is a truly remarkable girl with an indomitable spirt. She fights Sandhoff with a relentlessly positive attitude, and it’s been a joy to support her and her family. B Brave has provided funding that allows Maddie to be more mobile. She makes a deep impression on everyone she encounters. — B Brave Foundation is an organization dedicated to improving the lives of children affected by rare incurable neurological disorders. A message from their team: “B Brave supports families so they can care for their child without added financial stress and uncertainty. We provide tools and tactics to improve communication between families and medical providers. We work to empower doctors, nurses, therapists and child life specialists with tools to better serve our families, bridging gaps in a fragmented healthcare system that is not designed to manage children with complex medical needs. We equip parents to be resilient during times of unimaginable sorrow. And, we work to help them heal.” Find resources, information about the organization, and ways to support this vital cause at: https://bbravefoundation.org
